Looking for answers? Try finding them below:
1) Predictive testing for Huntington disease requires a referral to the Centre for Huntington Disease. predictive testing page
2) We recommend referrals to the Centre for Huntington Disease for symptomatic individuals. Diagnostic testing of symptomatic individuals to confirm diagnosis can be done by a blood test. We encourage referrals to the Centre for Huntington Disease of individuals found to have a confirmed diagnosis of Huntington Disease. medical genetics website
Any referral form is accepted. To access the CHD referral form, click here.
Currently there is a 2-3 month waiting list for appointments in the medical clinic and 4-6 month waiting list for appointments in the predictive testing clinic. Every effort is made to fill empty appointment spots so waitlist times can be maintained at a minimum.
The medical clinic runs every Tuesday each month. The predictive testing clinic runs simultaneously on Tuesdays plus one Wednesday a month at BC Children's and Women's Hospital.
The patient decides who and how many people they wish to include at every appointment. Every effort is made to accommodate family or friend support systems chosen by the patient for appointments.
For the medical clinic, clinical secretary Sandy Hazan contacts the patient directly to schedule appointments once a referral is received from the family doctor. For the predictive testing clinic, genetic counselor Susan Creighton contacts the patient to collect basic family history information. Once the telephone consultation is complete, clinical secretary Sandy Hazan contacts the patient directly to schedule appointments with the clinic.
Yes. The Centre for Huntington Disease is considered a specialist clinic and therefore requires a new referral form every six months per patient from family doctors to facilitate care. CHD specialists are not permitted to see HD patients without new referrals from the family doctor.
